Help Us support This Precious Baby!

Today I am going to talk about something that I just recently learned about from a very dear friend.  I’ve know this lady for a long time, when I just had 1 child at the time.  She is such a sweetheart and we’ve always kept in contact.  She is my oldest online friend, no, we never met in person but that doesn’t mean she doesn’t have a place in my heart or my life.
At the time, she didn’t have any kids & I just had one.  Now, I have 4 kids and she has 3.  Twin girls and a beautiful baby boy.  The other night we spoke and she told me something about her new little boy and his suffering.
Meet Ryan;

Isn’t he so sweet??  Ryan is 9 months old and is fighting a rare disease called Langerhans Cell Histiocytosis(LCH) that is in his immune system.
I wondered what this disease was and read up on it by going to www.histio.org.
This is a disease that attacks your immune system and is much like cancer, but isn’t.
Here is a bit about the disease;

Histiocytosis is a rare blood disease that is caused by an excess of white blood cells called histiocytes. The histiocytes cluster together and can attack the skin, bones, lung, liver, spleen, gums, ears, eyes, and/or the central nervous system. The disease can range from limited involvement that spontaneously regresses to progressive multiorgan involvement that can be chronic and debilitating. In some cases, the disease can be life-threatening.

In some ways, histiocytosis is similar to cancer and has historically been treated by oncologists with chemotherapy and radiation. Unlike cancer, histiocytosis sometimes goes into remission without treatment.

The vast majority of people diagnosed with histiocytosis are children under the age of 10, but it is also found in adults of all ages.

It is approximated that histiocytosis affects 1 in 200,000 children born each year in the United States. This illness is so rare, there is little research into its cause and treatment, and it is often referred to as an “orphan disease,” meaning it strikes too few people to generate government – supported research.

It took about 5 months for the doctors to figure out what exactly Ryan had and why he was so sick.

I was going to put some pictures on what this disease can do, and what it has done to Ryan, but they are very graphic and for that reason I won’t.  However, if you want to, you can look it up and see exactly what this awful disease can do and then picture this on a 9 month old child.
I have not seen pictures of Ryan and exactly what it has done to him physically and I am not sure I want to.  This sweet little baby is dealing with much more than most of us have ever, or will ever deal with in our lifetime.  I can’t deal with seeing what pain this child is going through, all I know is he needs help, Veronica and her husband need help.
They need you to keep Ryan in your prayers and pass on the love to their family for strength.

Veronica’s family has set up an event to get some donations coming in for Ryan, the expenses of his treatments.
If you live in the MI area, I beg for you to attend.  You do not have to know this family to support them & Ryan.  He deserves to live a healthy life and FIGHT this awful disease.
If you live in the MI area, or perhaps you want to get to know the family better, read at the link below (Facebook)
http://www.facebook.com/event.php?eid=244462776431&ref=mf

I am trying to set up donations for the Moore family through PayPal as they do not have an account yet.  So if you would like to donate, you can either donate to the address listed on the Facebook Cause page, OR let me know & I can make a special PayPal for Ryan and his family.

I will be talking more about  Langerhans Cell Histiocytosis(LCH) as I learn more about it myself.  This is new to me, and to be honest I have never even heard of this disease but what I have read thus far, it’s something we should support.
So this year, this is what Barefoot Mommies is supporting & we’re going to bring updates as much as we can of Ryan and him BEATING this.

Again, to read more about Langerhans Cell Histiocytosis(LCH) please visit http://www.histio.org/

Support this family!  They need support and most importantly prayers.  Give this baby some strength.

Saturday, March 6, 2010
3:00pm – 8:00pm
Barryton Community Center
20 Mile Rd (Chippewa Lake Rd, Barryton, MI

This benefit is for Ryan Moore who is 9 months old. He is fighting a rare disease called Langerhans Cell Histiocytosis(LCH) that is in his immune system. To learn more about this disease go to www.histio.org. He is the son of Tom and Veronica Moore and the grandson of Ron and Linda Myers

Horseshoe Tournament and Pig Roast Benefit:
Horseshoe Tournament:
$5.00 entry fee
starts @ 12:00pm sign up by 12:30pm
1st to 5th place trophies and 1st out

Dinner and Drinks:
$8.00 a person
$5.00 Seniors (60 and older)
$25.00 for a family of six
Kids 7 & under free
3pm-8pm
Auction @ 6pm

There will be a cake walk, bake sale, auction and D.J. by Rockin Robin

http://www.facebook.com/event.php?eid=244462776431&ref=mf